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Advocacy Isn't a Personality Trait. It's a Skill.
Opinion·8 min read

Advocacy Isn't a Personality Trait. It's a Skill.

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People keep telling parents of neurodivergent children to 'advocate harder'. Nobody ever teaches them how.

The advice is given constantly, in every support group and every corridor conversation and every well-meaning email from a professional who has done what they can and is now suggesting you do more: you need to advocate for your child.

The advice is not wrong. Advocacy is often the difference between a child getting what they need and a child being left to manage without it. But the way we dispense this advice, as if advocacy were a personality trait that some parents simply have and others lack, is doing real damage.

Advocacy is a skill. Skills can be learned. The system's failure to teach this skill to the people who need it most is not a neutral oversight.

What advocacy actually involves

Effective advocacy for a neurodivergent child involves knowing how to document concerns in writing. It involves understanding which professionals have which responsibilities and which decisions are theirs to make. It involves knowing when to escalate, through which channels, and how to do it without damaging the relationships you still need.

  • Always follow up verbal conversations with a written summary sent by email
  • Keep a dated log of every meeting, phone call and significant incident
  • Request everything in writing, decisions, recommendations, rationale
  • Know the difference between a wish and a legal entitlement, and be clear which one you are pursuing
  • Find out who makes the final decision on the issue you are raising, and speak to that person
  • Build allies in the system, the people who want to help but need your support to do so

The structural problem

The parents who are most exhausted, most under-resourced and most in need of support are often the ones being told to advocate harder. They are already doing everything they can. What they need is not more effort. They need the tools, the language and the institutional knowledge to make that effort land.

Until we start treating advocacy as a skill that can be taught, and start building those skills into the support we offer families, we will keep placing the entire burden of a broken system on the people it is breaking.

Opinion

A note on accuracy:While every effort has been made to ensure the information in this article is accurate at the time of writing, facts, policies and research can change. We're human, and sometimes we get things wrong. If you spot something that needs updating, we'd genuinely love to hear from you.

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Dave Harrison

Dave Harrison

ESW · Neurodiversity Advocate · Podcast Host

Dave Harrison is currently working in Australian schools as an Education Support Worker. He's the founder of THRVHUB, host of the Different Is Normal podcast, and a parent of a neurodivergent teenager, writing from both sides of the classroom.

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